Every two years, Bald Blair Public School holds a talent show to raise money for research into Spinal Muscular Atrophy (SMA), to accompany its annual SMA fundraiser.
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It is a genetic muscle wasting disease that is characterised by a loss of nerve cells called motor neurons and is the number one genetic killer of children under two years.
“Five years ago, my two-year-old cousin Charlotte Coddington lost her life to the terrible debilitating disease,” Year 5 student Bridget Mckemey said.
“Since that time. the school has been kind enough to allow our family to run a fundraiser for awareness of the disease and to contribute a little to the SMA association to help them provide equipment to those with the disease.”
As part of the event, pupils are encouraged to don the SMA colours – purple and orange.
